People die prematurely and suffer from poor health simply because they don?t have the knowledge, skills and confidence to self-manage their health effectively.
But whether they recognise it or not, patients and their carers are already self-managing during the many thousands of hours they spend at home caring for themselves each year.
Better patient self-management leads to healthier patients, more appropriate health service usage, and fewer unplanned hospital admissions.
A health IT startup claims since its mobile health app to improve patient adherence hit the market in November, patient adherence has exceeded 81 percent.
Via Dan Baxter
In the two previous posts in this series of Twitter visualizations, we've looked at the growth of patient communities and the dynamics and centrality of on
From looking at the visualization below, one can think of them as virtual communities set in space like constellations of stars but with people orbiting one another. The laws of physics still apply, but gravity has become a function of conversations. Conversation is gravity. Boundaries are broken down. Traditional barriers like location, profession, demographics, physical abilities and conditions will not stop you from joining in. The world is flattening. And because many traditional hierarchies and perceptions are eroding as a consequence of healthcare social media, new types of communication and communities are emerging. Twitter is the new melting pot of ideas, people, and disruptive innovation.....
PREPARE is a program that can help you:
make medical decisions for yourself and otherstalk with your doctorsget the medical care that is right for you
You can view this website with your friends
and family.
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For over 2 years, Symplur has collected health conversations on Twitter. From a humble start, our infrastructure has grown and matured to scale with the tr
Via bacigalupe
Better than any existing literature, this book highlights techniques and behaviors that clinicians must use to support the empowered patient, and suggests significant improvements to decision aids.
Cell Phone Activities | Pew Internet & American Life Project...
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Fully 85% of American adults own a cell phone and now use the devices to do much more than make phone calls. Cell phones have become a portal for an ever-growing list of activities. In nationally representative phone surveys in the spring and summer, the Pew Research Center?s Internet & American Life Project obtained readings on some of the most popular activities:
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An app that ?gamifys? medical education and one that provides cancer information to patients were among the mHealth winners in a UN-backed global competition to identify the best mobile applications and services.
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The health and education category at the World Summit Award ? Mobile also featured apps that assist type I diabetics with self-management, help people cope with stress and check for harmful chemicals in cosmetics.
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The bi-annual awards are a global initiative within the framework of the United Nations World Summit on the Information Society, and this year 40 apps from 28 countries on five continents were selected as winners.
WSA-mobile chairman Peter Bruck said: ?Our goal is to find and promote mobile content that really makes a difference for people around the globe. The awarded apps prove that there is a lot going on outside Europe and the USA.
?If we want to make use of mobile technology?s full potential, these trends must not be ignored.?
"When we compared the use of clinical services before and after the index date between MHM users and nonusers, we saw a significant increase in the per-member rates of office visits (0.7 per member per year; 95% CI, 0.6-0.7; P < .001) and telephone encounters (0.3 per member per year; 95% CI, 0.2-0.3; P < .001)."...
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Context: Prior studies suggest that providing patients with online access to health records and e-mail communication with physicians may substitute for traditional health care services.
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Objective:? To assess health care utilization by both users and nonusers of online access to health records before and after initiation of MyHealthManager (MHM), a patient online access system.
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Results: "When we compared the use of clinical services before and after the index date between MHM users and nonusers, we saw a significant increase in the per-member rates of office visits (0.7 per member per year; 95% CI, 0.6-0.7; P < .001) and telephone encounters (0.3 per member per year; 95% CI, 0.2-0.3; P < .001)."...
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Having online access to medical records and clinicians was associated with increased use of clinical services compared with group members who did not have online access.
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"Patient Experience of Care" Measure in Hospital Value-Based Purchasing: HealthCare.gov
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Use this table to learn about different measures of care quality used in Hospital Value-Based Purchasing.
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See "Patient Experience of Care" !
This 4th edition of the European Patient Group Directory was compiled by PatientView and published by Burson-Marsteller. European Health Forum Gastein?is the media partner for this publication.
Via Lionel Reichardt / le Pharmageek
8 Important Questinos Most patients forget to ask their Doctor
Come to the doctor prepared to ask these eight important questions too many patients forget to ask.
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1 What is my condition and what caused it?
2 Why are you prescribing this drug?
3 What are the possible side effects?
4 What are my treatment options?
5 What is my outlook for the future?
6 How will I knwo if my treatment is working?
7 What changes do I need to make in my daily life?
8 Wat are your qualitifcations?
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From Insurance Quotes (!)
Each year, millions of Canadians go through the ritual of seeing their doctor and getting some lab tests. And while they wait anxiously for the results, consider this.
A study published earlier this month in the Archives of Internal Medicine found that nearly half of all medical tests ordered the day a patient is discharged from hospital aren't even looked at by the doctor caring for the patient. Now you might think that doctors are too busy preparing to send patients home to have time to order tests, but they aren't. Seven percent of all blood tests ordered during a patient's stay in hospital are ordered on the day of discharge. All told, tests ordered on the day of discharge make up 47 percent of tests whose results are not checked by the doctor at the time of discharge.
The growth of the Internet and the rise of social networks have changed the way we communicate, interact, find information, shop, learn, and more, including the way we learn about healthcare pharmaceuticals and medical devices
The number of groups that have grown around specific issues in healthcare is astounding. To get an idea of just how many online communities there are for different diseases and conditions, just take a look at?this list, which aggregates the wide variety and large number of pharma and healthcare communities online.
Hashtags help categorize conversations within social media, marking them by keywords or acronyms specific to a certain topic. This makes it easier to create and find specific communities, whether it?s #HCSM (healthcare social media), #Diabetes, or #BreastCancer. Twitter chats are ways for people around the globe to come together to discuss specific topics. Symplur is doing a great job of compiling all of the?healthcare hashtags?and categorizing them.
Sitting in a physician?s office wearing nothing but a paper thin gown can be daunting in and of itself. Now imagine, your white coat syndrome worsens as your doctor throws out unfamiliar vocabulary, as your mind draws a blank. If this sounds familiar, you?re not alone, according to?Archives of Internal Medicine?most patients only understand and retain about half of what a provider tells them, and do not feel comfortable asking providers to clarify. Approximately 90 million people in the United States lack the basic skills or proficiency necessary to understand and use health information as reported by?The Institute of Medicine. National data from the Center for Education Statistics?suggests that only 12 percent of American adults have proficient health literacy skills ? reading, writing, understanding, computing, communication and using health information. The growing disparity in health literacy is directly impacting patient health. Low health literacy has been estimated to cost the U.S. economy between $106 billion and $236 billion annually reported by the?Center for Health Policy Research.
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As defined in?Health People?2010, Health literacy is:?
?The degree to which individuals have the capacity to obtain, process, and understand basic health information and services needed to make appropriate health decisions.?
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The problem affects patients of all demographics. People of all ages, race, income and education levels have a difficult time communicating with healthcare providers, and health literacy can also be influenced by culture, language, religion and belief systems.
Via Andrew Spong
If you?re not comfortable sharing a sensitive health question with your doctor, you?re not alone. Two out of three Americans go to the Web to get answers on private health topics such as sex, STDs, weight issues and substance abuse, according to researchers.
In a recent study performed by Pearl.com, a subscription portal website that connects users to doctors, lawyers and other professionals for advice, 63 percent of the 1,000 people surveyed said they?re more likely to find answers to private health-related questions online rather than in-person at their doctor?s office.
Interesting, though: the reasons users gave for going to the web rather than their doctors weren?t just that their questions were personal or embarrassing. Some said they weren?t going to their doctors because they were afraid those types of questions wouldn?t be covered by insurance (18%) or would incur an expensive co-pay (19%). Thirteen percent also thought that going to a doctor to get their question answered would lead to the discovery of a pre-existing condition.
A study on the effect that a medications color and shape have on adherence gives short shrift to the marketing component that urges patients not to take medications that dont conform to doctors orders...
Philips Survey Reveals One in 10 Americans Believe Online Health Information Saved Their Life
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A recent U.S. survey commissioned by Royal Philips Electronics? (NYSE: PHG, AEX: PHIA), a leading health and well-being company, found that consumers believe web-enabled, mHealth and mobile apps are part of their health care solutions and key to living long lives. For example, one in 10 Americans (11 percent) surveyed believe that if it were not for web-based health information, ?they might already be dead or severely incapacitated.?
?We are in the early stages of the web-enabled, mHealth, mobile app world of healthcare delivery. Near- future apps will focus on tying together health information technologies, connecting with doctors, nurses, healthcare professionals and patients, all within a social context that facilitates shared medical decision-making,? said Dr. Eric Silfen, Chief Medical Officer of Philips Healthcare.? ?This evolution will harken the new vital signs of the clinical times with technologies that help prevent medical errors, lower the financial and social cost of care, sustain a higher quality of medical practice and support an evidence-based standard for medicine in general. Ultimately, the technological undercurrents of the post-PC world ? the power of many, designer gadgets, cloud ecosystems, and mobile app computing ? will hasten the personalization and partnerships that will transform sustainable medical care to the highest quality.?
I have come to believe that patient portals in particular and patient access to clinical data in general are major steps toward patient empowerment.
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Pathologists and radiologists are hopefully coming to terms with patient access to a much broader swath of diagnostic information. Clinicians and hospital executives are in the same boat.."
Having discussed with Howard Luks, Eugene Borukovich and
Andrew Spong on Twitter (resp. @hjluks @HealthEugene @andrewspong ) about the enormous growth of Apps for patients in trying to cope with their health(y) problems, we were wondering how this "tsunami" of apps will turn into serious help and use for patients. Howard thought it would be because fo the doctors' choice, Eugene mentioned an incentive system could do the trick, which Andrew doubted. I am convinced that the fit of app to different phases of use by patients will appear to create sustainable use. To acquire this knowledge on how apps are used, we do not so much need "code-a-thons" or "awesome designs", but serious investigation in the app use and functionality for disease management..
It was mentioned we could do a seminar... I like that, maybe might initiate it myself. What do you think guys?
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Anyway, here's anohter reference of apps to look at.. ;-)
Rob ( oh, yes, it is @rohal )
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Insights to engagement.... by Deloitte Review
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In classic business pedagogy, a consumer is the end user who has the willingness, opportunity and resources to purchase a product or service. Consumers are the foundation of the United States? economy: 70 percent of our Gross Domestic Product (GDP) is dependent upon personal consumption - their needs and wants drive innovation in every domain of our daily lives ? except, perhaps, health care.
In the health care industry, physicians call consumers ?patients;? health plans call them ?enrollees? or ?members;? and bio-pharma companies refer to them as ?users? or sometimes ?subjects? if they are involved in a clinical trial. Many of the designations in health care infer that?unlike other industries?individuals play a primarily passive or reactionary role.
Recently, health policy experts and economists have challenged the health care industry?s disregard of consumerism; they reason that costs would be lower, service better and quality substantially improved if the industry repositioned itself as a consumer market...
This article highlights data-driven insights gleaned from five years of Deloitte* consumer surveys and other Deloitte studies that point to untapped potential for increased health care industry engagement with consumers and, with that, new challenges and opportunities for providers, health plans, employers and government....
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Ah, ehm...
Presenting #hcsmca?s 2-year report card. Alaina Cyr created yet another?beautiful infographic.?
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How the health care social media communities like #hcsmCA #hcsm (US) #hcsmEU etc. makes a global platform of interchange and communication between all stakeholders in health care: patients, physicians, industry, governmental institutions, university and other do find there a platform of trust, laying the basics for learning, sharing and evolving on Twitter as a main entrance gate to all.
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Ref. http://www.symplur.com/healthcare-hashtags/
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Yet, discussion is one, how to step up to collaboration. I see more offsprings to partnership in health to come!
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Thanks to Collen Young, Canada to refer me to this!
Find her at http://bit.ly/Wkj1sg
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;-)
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With policy documents promoting patient-centred healthcare, Steven Laitner explores how the shared decision making programme is providing tools to help make them reality...
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Shared decision making is the belief that patients and their clinicians bring equally valuable input to the table when patients reach a decisions crossroads in their healthcare.
Clinicians know about the options available, while patients know what they want from their treatment. With current clinical information, relevant to their particular condition, patients can be helped to work through any questions they may have, explore the options available, and take a treatment route which best suits their needs and expectations.
Shared decision making can reduce treatment disagreements, lead to more realistic expectations, reduce clinically unwarranted treatments, and potentially reduce litigation. Importantly, patients are more likely to stick with a course of action or treatment when they have chosen it, rather than had it foisted upon them. It leads to a better patient experience.
Engaging and empowering patients with consumer eHealth solutions
Fostering patient expertise
This report was commissioned by Health Canada as part of generous funding provided through a Canadian Institutes of Health Research (CIHR) Science Policy Fellowship.
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We are told that we are on the precipice of a health care crisis, and that in order to avoid it we must ?bend the health care cost curve?. eHealth technologies are one way of bending the cost curve, in that they promise to enable novel efficiencies in the health care system. One such set of efficiencies relies on engaging and empowering patients in a model of delivery referred to as patient centred care (PCC).
PCC is meant, in part, to change the role of the patient within the health care system from ?passive recipient? of health care services, to ?active participant? in their own health care and in the health care system more broadly. Evidence suggests that empowering patients in this way produces benefits both for the patient (e.g. better health outcomes, higher satisfaction with care), and to the health care system (e.g. new efficiencies in health care delivery).
Consumer Health Solutions (CHSs) are technologies that can engage and empower patients, helping them to become more active participants in their own health care and in the health care system more generally.
However, PCC can be implemented in practice along a continuum of patient engagement and empowerment. At the ?thin? end of the continuum, few of the benefits of PCC are realized. At the ?thicker? end, however, patients are more likely to reap the beneficial outcomes associated with PCC. At this end patients are also referred to as ?experts? in their own care...
Via lionelreichardt
A global directory of patient blogs...
curated by Andrew Spong
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